@kdfrawg @tomas Thanks to both of you.
@tomas We’re holding off going up there because my sister in law wants to come and see us this weekend & she has been told she only has months left & is fitting the visit in between rounds of chemo. My family's a mess at the moment.
@tomas Thanks. He’s refused the thickener so far, but this might change his view. He doesn't have a strong cough & can move very little. I think he had a chest infection a couple of months ago. One time will be the one, but we don't know yet if it's this one.
@tomas Trying to pin down the progression is a kind of coping mechanism, I suppose. Trying to reduce the uncertainty. I know there aren't any nice neat answers really.
@tomas Just trying to get a feel for the immediate outlook. I know pneumonia is the commonest cause of death in people with PSP, but not how risky each attack is.
For some reason, when trying to look up “aspiration pneumonia” I kept typing “aspirational pneumonia” which makes it sound like the next great fad.
@matigo It’s 16 outside at the moment, so the heat isn’t a problem at the moment. I think we had a high around 21 or 22. Quite nice.
@kdfrawg He’s also on his third ward so far (not counting spending Friday in A&E).