@hazardwarning Oh dear. That sounds dangerous!
@kdfrawg Considering that several times her treatments have been postponed to allow her immune system to pick up a bit, they have a point. I think that’s her decision, though.
// @hazardwarning
@kdfrawg I understand that one of the problems with getting assessments for people with PSP is that the assessors don’t know anything about the disease, so they can easily misinterpret things. I think part of my role is to feed them the information they need without setting their backs up.
// @hazardwarning @joanna
@hazardwarning No, she shouldn’t, but I think she wants to keep doing normal things as much as she possibly can. Tough times all round.
@hazardwarning Yes, it’s good that you can all be there.
I’m heading back to my parents’ on Monday. Apparently the ward staff chased my sister in law away when she & my brother called in to see my father after her chemo yesterday — they said she shouldn’t be hanging around all those germs.
@hazardwarning I was just wondering how you and he were doing. Sounds as if he’s spending his time well. :)
@kdfrawg There is a section for saying if someone is answering on behalf of the patient, and whether the patient knows they're doing so.
// @hazardwarning @joanna
@joanna I could do that, but I’d guess that the people doing the assessment are used to assessing the people the form is designed to address, so I think the best thing is for me to explain why the question is not applicable.
// @hazardwarning
@hazardwarning When life gets too horrid, we’ll avoid it by sending one another files to format and reformat.
@hazardwarning When I get word docs, I forward them to Mr I to convert to pdf, because I don’t have Word & Pages doesn’t always get the layout quite right — you can end up with the page breaks a bit off. I’ll fill it in & send a pdf back to them.